Useful resources for patients and families living with epilepsy — information, support organisations, apps and trusted Australian links.
Australia’s leading epilepsy support organisation — information, practical resources, fact sheets, first aid training and a national helpline supporting people living with epilepsy across Australia.
epilepsy.org.au ↗
Victoria’s peak epilepsy body — support groups, community programs, education and a Victorian helpline for people living with epilepsy and their families.
epilepsyfoundation.org.au ↗
Our research partner — advancing epilepsy care through the MRI-CLOUD platform and clinical research across Australia.
australianepilepsyproject.org.au ↗An engaging website for learning more about epilepsy in general, including epilepsy research and information about living with epilepsy.
epilepsysparks.com ↗
Step-by-step first aid for the main seizure types — essential reading for patients, families, carers and teachers.
Seizure first aid guide ↗
Practical seizure first aid information and animated first-aid videos for adults and children from Epilepsy Action Australia.
Seizure first aid ↗
How to record seizure activity, frequency, triggers and recovery — including paper diary templates, smartphone apps and tips on filming a seizure.
Recording seizures & diaries ↗
Guidance on tracking seizures including a downloadable Seizure Smart fact sheet, suggested apps and what to record between appointments.
Tracking seizures ↗
Download an appropriate epilepsy management plan from the Epilepsy Foundation. Useful for schools, workplaces and carers.
Epilepsy management plans ↗Victorian Patient Transport Assistance Scheme — financial assistance for rural Victorians travelling more than 100km for specialist medical care. Covers travel costs and accommodation up to $45/night.
health.vic.gov.au ↗Isolated Patients Travel and Accommodation Assistance Scheme — NSW Government scheme providing financial assistance for patients travelling long distances for specialist care.
health.nsw.gov.au ↗
We acknowledge the Wurundjeri Woi Wurrung people of the Kulin Nation as the traditional custodians of this land. We pay respect to their Elders — past, present and emerging.